Progeria: First black child with rare aging disease - Photo 1 - Pictures

Most kids are in a hurry to grow up. But for 12-year-old South African Ontlametse Phalatse, growing older is not a choice. This small girl with a big personality is one of only 80 children in the world diagnosed with progeria, a premature aging condition. She's also the first black child with the fatal genetic condition.

"I call myself a first lady because I'm the first black child with this disease ... Which other black child do you know with this disease?" she told the Associated Press.

Children with progeria are born looking healthy, but soon display characteristics of accelerated aging, such as failure to grow, stiff joints and loss of body fat and hair. What's it like to live with progeria? Keep clicking for an inside look at Ontlametse's life...