Congenital Heart Dis-ease Open Heart Surgery-for Babies and Toddlers

I had little contact with heart illness however only 10 days later was at the Pediatric Intensive Care Uni-t (PICU) bedroom of our baby who needed life-saving open heart surgery o-n 1 December 2002. If you think anything at all, you will perhaps require to read about Zofran Birth Defect Lawsuit Alleges Drug Caused Congenital Defects In Two Children.

Although many conditions are very well known, these are little known facts:

Heart defects are present in 1 in 10-0 children

Heart problems in young ones may be the major cause of childhood death in Australia accounting for half an hour of child deaths.

Almost twice as many young ones die of congenital cardiovascular disease in comparison with all childhood cancers

In 80-second of cases the cause is basically unknown.

The remarkable thing is how much medicine and surgery has developed to permit another opportunity for many babies like mine that only twenty years ago would not have survived.

Although there's a multitude of different abnormalities that can happen, our baby required reconstruction for a coarctation of the aortic arch, reconstruction of both the aortic and mitral valves and closing of the Ventricular Septal Defect (VSD).

The aortic and mitral valves were narrow and the physiology of the valves was somewhat different to what they ought to have already been. Whilst the aortic valve reconstruction was quite effective, the mitral valve is a lot more complicated and following surgery the gradient across the valve was still high hence making our baby with mitral valve stenosis (narrowing of the valve). For alternative ways to look at it, we know people gander at:

This particular surgery took 5.5 hours and the stakes were high an one in ten or 10% chance that our child wouldn't survive.

Following surgery the next 24 hours is seen as a period where if issues are going to be experienced, that is apt to be the period. This is simply not to state that post 24-hours means every thing is fine and dandy. Recovery within our case was slow with a further five days within the Pediatric Intensive Care Uni-t for weaning off the ventilator which allows and occasionally triggers breathing, as well as waiting for the center to stay in order that pacemakers and other drugs are not necessary.

Much of the recovery period is trial and error or maybe more like careful monitoring and adjustment as necessary. For example following heart surgery patients are fluid restricted to support the task the heart has to do thus trying to avoid the build-up of fluids ultimately causing heart failure. On-the other side of this cash however is the fact that an individual may then wind up dry.

It is hard to know whether advance understanding of a heart problem in an unborn baby could be a lot better than the shock we experienced with analysis two days after the birth of our child. In any event it is an enormously demanding process that in our case didn't and hasn't finished with all the surgery following birth. In many cases further surgery is required, for all of us another reconstruction of the mitral valve at two years of age and further surgery is expected with final replacement of the mitral valve with an artificial valve.

The as yet not known during our process and oftentimes is when the next surgery is likely to be needed. For these cases, families of children, youngsters and young ones go from day to day, week to week, month to month, and sometimes year to year ahead of the next call to surgery comes.

For those in the same situation our desires and thoughts go out to you. For anyone interested, the story in terms of the ongoing saga with our child is found at